The scope of cancer informatics at a cancer center is to serve informatics needs that span the cancer care and research continuum.
Cancer Research Data Commons
The Cancer Informatics Shared Resource (CISR), in close collaboration with other UF Health Cancer Center and UF entities, link cancer investigators to the diverse data, methods and domain expertise on campus through the Cancer Enterprise Data Warehouse (Cancer EDW):
- the large amount unique data resources (e.g., UF Integrated Data Repository and OneFlorida Data Trust),
- the appropriate cancer informatics tools and methods (e.g. data integration, terminology and ontology support, and data harmonization), and
- analytical expertise.
Cancer Informatics Tools and Methods
The CISR will provide support for informatics resources across their lifecycle, including the development of innovative methods and algorithms, early stage software development, advanced stage software development, and sustainment of high-value resources on which the UFHCC community has come to depend.
The CISR will:
- promote integration of informatics technology with hypothesis-driven cancer research and translational/clinical investigations;
- provide flexible, scalable, and sustainable informatics support using multiple mechanisms matched to the various needs of cancer investigators;
- promote interdisciplinary collaborations in technology development and distribution; and
- promote technology dissemination and software reuse.
The CISR will support the surveillance of cancer burden, cancer risk factors, and cancer-related activities and research focusing on the UFHCC catchment area and Florida, leveraging the heterogenous datasets in the UFHCC Cancer EDW (e.g., OneFlorida, Florida Cancer Data System [FCDS], UFHealth EHRs, and local tumor registry data). These surveillance systems will be a shared resource for UFHCC investigators to draw upon for their research and a tool for UFHCC administrative leadership to visualize data that inform resource allocation, project prioritization, and measurement of impact.
The CISR will generate data and maps of cancer statistics and cancer risk factors, including health behaviors and environmental factors to:
- support the evolving definition of the UFHCC catchment area
- characterize the UFHCC catchment area
- help conceive research ideas and identify research priorities
- identify communities and population sub-groups at elevated cancer burden for outreach?
eHealth and mHealth: Digital Health
The CISR will support the development and implementation of electronic health (eHealth) and mobile health (mHealth)—digital health interventions and programs.
The CISR will facilitate the development and adoption of methods and tools to support:
- the development and implementation of eHealth/mHealth applications and interventions;
- data collection, processing, and management in eHealth/mHealth applications,
- integration of eHealth/mHealth applications to clinical systems (e.g., EHR systems) in close collaborations with the health system,
- the engagement communities and key stakeholders in the development of eHealth/mHealth tools and other patient- or clinician-facing technologies that are relevant to addressing the needs of patients, especially those in the UF Health catchment area, in close collaboration with the UFHCC Community Outreach and Engagement office.